​​​​​​​​​​​APHL collaborates with state newborn screening programs and legal counsels to monitor legal and legislative issues affecting state newborn screening programs. It conducts these activities through the Ethical, Legal, Social, and Policy Issues (ELSPI) Subcommittee. APHL also disseminates related policy resources.

Genetic Privacy and Other Related NBS Symposium Sessions

Model language for state regulations regarding NBS specimen and data access by law enforcement and related entities: A Roundtable Conversation

The Next Frontier of Genetics and Privacy: NBS at the Intersection

Newborn Screening Genetic Privacy Concerns Persist, Despite the Common Rule

Position Statements on Newborn Screening

Linking Newborn Screening Programs with Vital Records is Essential for Accurate Assessment of Screening Coverage:  Sunsets July 2030
To optimize newborn screening (NBS) efforts, it is imperative NBS programs are integrated with vital records systems.​

Timely, efficient and integrated short term follow-up programs are a critical and necessary component of a successful newborn screening system.

Newborn Screening Contingency Planning: Sunset December 2022 
APHL recommends that all state newborn screening systems maintain and update a Continuity of Operations Plan (COOP) that ensures minimal or no interruption of services. ​​