State Implementation New Disorders webinar from
APHL is seeking applicants to implement newborn screening for one or more of the following disorders: Pompe Disease, Mucopolysaccharidosis I (MPS-1) and X-linked Adrenoleukodystrophy (x-ALD). APHL anticipates that each subawardee would receive up to $70,000 per year for two years for implementing new disorder screening.
All U.S. and territorial NBS programs who have not fully implemented Pompe, MPS-1, and/or X-ALD screening (defined as: demonstrated ability to test all newborns for Pompe, MPS-1, and/or X-ALD, having a clinical referral network to follow and treat identified newborns, and having an educational and awareness program for families and health care providers).
Scope of Work
The primary focus of this request for proposals is to support newborn screening programs and other entities through technical and financial means in order to achieve both a greater number of states mandating NBS for Pompe, MPS-1, and/or X-ALD and a greater number of newborns receiving appropriate screening and follow-up for any or all of the three conditions (Pompe, MPS-1, X-ALD).
October 11, 2016 – RFP Issued
October 18, 2016 – Technical Assistance Webinar at 2:00 pm ET
October 19, 2016 – Letter of intent due by 5:00 pm ET to APHL
November 18, 2016 – RFP responses due by 5:00 pm ET to APHL
December 9, 2016 – Awardees notified
February 1, 2016 – Contracts ratified between APHL and awardees
Applications have been reviewed. Applicants will be contacted individually. Please feel free to contact Sikha Singh at
Sikha.Singh@aphl.org or 240.485.2726 with any questions.
Request for Proposals Materials
Request for Proposals (RFP) provides details on how to complete this RFP. This RFP contains information on evaluation criteria.
Documents for Review and Completion
Request for Proposals, including Appendix A: Readiness Tool (mandatory)
Point of Contact
If you have any questions please contact Sikha Singh at
Sikha.Singh@aphl.org for assistance